home
***
CD-ROM
|
disk
|
FTP
|
other
***
search
/
Monster Media 1994 #2
/
Monster Media No. 2 (Monster Media)(1994).ISO
/
text
/
nkcanews.zip
/
NKCAINFO.TXT
< prev
Wrap
Text File
|
1994-05-14
|
3KB
|
54 lines
A Brief Overview of the
National Kidney Cancer Association
The National Kidney Cancer Association actively works to increase the survival
of kidney cancer patients and improve their care. The Association (1) provides
information to patients and physicians, (2) sponsors research on kidney cancer,
and (3) acts as an advocate on behalf of patients.
The NKCA publishes WE HAVE KIDNEY CANCER, a 56-page booklet for patients and
their families. A free copy of this booklet may be obtained by calling the
NKCA at 708-332-1051 or by writing to the NKCA at 1234 Sherman Avenue,
Evanston, IL 60202. The FAX number is 708-328-4425.
The Association also publishes KIDNEY CANCER NEWS, a quarterly newsletter for
patients and physicians. To obtain a free subscription, contact the
Association. Other information is also available through the Association.
The Association also operates a free computer bulletin board for patients,
physicians, and others with an interest in kidney cancer. This free BBS can be
accessed at 708-332-1052 (2400 BAUD, 8 DATA BITS, 1 STOP BIT, NO PARITY, FULL
DUPLEX, NO ECHO, ANSI terminal compatible). Free E-mail, information on kidney
cancer and information on the NKCA are available 24 hours per day.
The Association holds regular meetings of patients, families and physicians to
discuss current treatments and issues in kidney cancer. These meetings are
held by local chapters in New York, Chicago, Los Angeles, and other major
cities. Through these support group activities, patients can meet other
patients and learn about their disease. The Association believes that patients
who are well informed about their disease are more likely to make good
decisions regarding treatment, and are more likely to survive their disease.
The Association operates a kidney cancer research fund which is supported by
patients and their families. Income from the fund is used to sponsor research
on kidney cancer. The Association's Medical Advisory Board is composed of
leading physician/researchers in the field of kidney cancer and the
Association's research program is directed by this board.
The Association represents patients with government and other organizations.
For example, the Association has testified before the FDA on new drugs for
treating kidney cancer. It also assists patients in obtaining insurance
company reimbursements for new, state-of-the-art therapies. It will also help
patients fight employment discrimination.
Incorporated in 1990 as a State of Illinois non-profit corporation, the
Association has been recognized by the U.S. Internal Revenue Service as a tax-
exempt charitable organization, 501(c)(3). Donations made to the Association
qualify as tax deductible, charitable contributions.
If you have questions about kidney cancer, call the Association. Inquiries are
always welcome. If you would like to participate in Association activities
such as local chapter meetings, please call or write to the Association.